Windy City Media Group Frontpage News
Celebrating 30 Years of Gay Lesbian Bisexual and Trans News
home search facebook twitter join
Gay News Sponsor
About WCMG Publications News  Entertainment Features Donate Bars & Clubs Calendar Advertisers OUT! Guide    Marriage



AIDS @ 35: Sean Strub speaks about the HIV/AIDS crisis
by Matt Simonette

facebook twitter pin it google +1 reddit email

On June 5, 1981, the Centers for Disease Control ( CDC, now the Centers for Disease Control and Prevention ) published in its Morbidity and Mortality Weekly Report ( MMWR ) that there were five cases—all gay men in Los Angeles—of pneumocystis carinii pneumonia ( PCP ). Two of the men had died.

That report set the stage for the HIV/AIDS epidemic in the United States and around the world. In the 35 years since, about 71 million have been infected with HIV worldwide, while about 34 million have died from complications of the disease. Tens of thousands mobilized to call for significant action from politicians, health providers, drug companies and myriad stakeholders.

"Looking back on all we accomplished together is equal parts heartbreaking and uplifting," said GMHC ( Gay Men's Health Crisis ) CEO Kelsie Louie. "When we begged for help in the places that had the ability to provide assistance, the doors were closed because fear and hysteria ruled the day. Our response was simple; we will do it ourselves—and we did."

Among those who mobilized was writer and activist Sean Strub. Strub, the founder of POZ Magazine, among other publications, was a longtime member of ACT UP New York and took part in a number of political and creative endeavors over the years. He was the first HIV-positive candidate to run for federal office, for example, and also produced the play The Night Larry Kramer Kissed Me in the early 1990s. Strub was responsible for convincing playwright Tennessee Williams to sign the first fundraising letter for the Human Rights Campaign Fund ( now HRC ).

He has long been critical of the evolution of HIV/AIDS activism, especially of the movement from protest action to what he has called a "benefactor-victim" paradigm of fundraising. Strub now lives in Pennsylvania, and focuses his activism work on laws that criminalize HIV transmission. He runs an inn along with his partner and was recently elected mayor of the town of Milford.

As part of our AIDS @ 35 series, Windy City Times interviewed Strub via email.

Windy City Times: Give a comment about being elected mayor of Milford and what it means to you. Also, can you briefly summarize the process of how the mayor is selected there?

Sean Strub: Milford is a small village—about 1,100 residents—but it is the county seat for Pike County, Pennsylvania, and the "front door" to this northeast Pennsylvania, Upper Delaware River Valley region. We are governed by an elected seven-member borough council and a mayor; our mayor recently resigned and the council had the responsibility to fill the vacancy. Several council members asked if I would put my name in and I did and was appointed to fill the rest of the unexpired term. I'll serve through 2017 unless I run for the office in November 2017.

The mayor's most important responsibility is to oversee the police department, but I also am the tiebreaker for the council and have ceremonial functions. Today, I was the ribbon-cutter at the opening of our farmer's market and tomorrow [Memorial Day], I'll be marching with the Vietnam Veterans of America.

Small towns like Milford, all over the country, have been devastated by the last 40 years of state and federal policies that have prioritized Wall Street over Main Street. Big-box retail, in particular, has been devastating, but also the dramatic erosion of the middle class, degradation of our public schools and other factors have forced many small towns to struggle to maintain their quality of life. That's what interests me about serving as mayor, to see if we can find ways to maintain or improve our quality of life, protect the economic viability of our central business district and have the most local unit of government play a constructive role in addressing addiction, homelessness, underemployment and other challenges in our region.

I didn't aspire to be mayor of a tiny town—the last time I ran for office it was an unsuccessful bid for the U.S. Congress—but I am looking forward to the challenges it presents and experimenting to find strategies that work for Milford.

WCT: What accounts for your interest in politics?

Strub: I grew up in Iowa City in the 1960s and early '70s, where I was immersed in anti-war activism, the women's movement and, to a lesser extent, the civil-rights movement. I never knew a time as a young person when politics did not interest me or when I did not feel that it was my responsibility to be informed and participate in whatever ways I could. Perhaps some of that drive comes from the sense of being an outsider, growing up gay. I've also wondered if being bullied while young might translate into developing a greater capacity for empathy that translates into political action. I see that in others and suspect it has played a role in my interest in social-justice work. And, of course, the epidemic largely has defined my adult life and that work, particularly around criminalization of the most vulnerable populations—particularly people living with HIV—continues to be the most satisfying part of my work.

WCT: What does this new post mean for your activism?

Strub: I wish that every national "policy leader" and all the VIPs and big donors and executive directors also had the experience of working at the neighborhood or community level, trying to integrate the values we espouse into the practical day-to-day mechanics of local governance. Twenty years ago, when Xavier [Morales, Strub's partner] and I mostly left the city for life in a rural area that is very conservative culturally, I didn't anticipate how much I would learn and grow from getting to know people I would never have known otherwise. It's given me a better understanding of the rage driving the support for [Donald] Trump and a perspective on how national progressive political discourse can sound elitist or even irrelevant to people on the ground trying to salvage a kid from a dangerous home environment, or improve a school system, or deliver services without further taxing people who are already barely getting by.

WCT: How do you think the nation's understanding of HIV/AIDS has evolved in the 35 years since the disease really came to the spotlight?

Strub: The country went from seeing people with AIDS through the lens of their likely death, one that could be horrific and probably would happen soon, through now seeing people through the likelihood of our survival. And surviving longer means, to much of society, that we are around longer to infect others, so we become defined as viral vectors, potential infectors, an inherently dangerous population that needs to be tracked down, tested, listed, identified, reported, followed and, in many cases, criminalized.

The LGBT community, at one time, accepted the epidemic as a collective responsibility; today they are mostly ( but not entirely ) gone from the epidemic. I don't think it is a coincidence that the institutional LGBT community's abandonment of the epidemic has roughly paralleled the epidemic becoming more about the very young, women and people of color. HIV-related stigma today is worse than it has ever been, in my opinion, and some of the worst offenders are gay men themselves. This was something I never could have imagined years ago. But then I couldn't imagine even surviving, either.

WCT: Do you think we will or can ever have an era of engaged and ramped-up HIV/AIDS activism as in the late '80s and early '90s? You've said that the gay community was more effective when it was more of an "outsider." Is it possible to recapture that energy? Is it necessary?

Strub: We desperately need that energy, but we need it as part of an intersectional movement that simultaneously addresses racism, misogyny, homophobia, economic injustice, drug and sex work policy and penal system reform. The initial AIDS activism was to a large extent a type of identity politics ( survival-driven, to be sure, but still based around identity ) and for most gay white men, AIDS was a singular challenge. Their skin color and gender provided a lot of privilege and that privilege was in many cases leveraged in effective ways, but in a narrow way.

I want to see more AIDS activism—or HIV activism—but I want to see it in partnership and as part of a broader campaign for justice in the country. We need to be fighting for people who are unjustly incarcerated, for people of color, for people living in poverty just as hard as we fight for people with HIV. I am hopeful that we are, as a community, more sophisticated than we were years ago. That isn't to diminish the work years ago, when it was also for many of us driven by an effort to survive, but our work today can't exist in isolation to the extent it did for most of us in the late '80s and early '90s.

We'll never treat our way out of the epidemic. And we can't effectively combat stigma until we focus on empowering the stigmatized and understand stigma as something that isn't just about having HIV, or being a racial minority, or having a criminal record; stigma is a way of seeing the world for many and we need to change that on a fundamental level. But we do so not by focusing on the stigmatizers, but by focusing on the stigmatized.

WCT: Do you think we will make strides in "decriminalizing" HIV-transmission, which has been the focus of much of your activism?

Strub: Seven or eight years ago, when I began to focus so intensely on HIV criminalization reform, many ( including those who were sympathetic ) told me it was a lost cause and we would never make much progress. Today we have a robust and rapidly growing movement—one that is increasingly arm-in-arm with those fighting racism and the incarceral society, advocating for sex work and drug policy change, and both Iowa and Colorado have changed their statutes.

Efforts are underway in at least another 20 states—all in various stages—but we are seeing the fruit of those organizing efforts in the new voices being heard, alliances being created and our success in stopping virtually every measure introduced in the last six years that would have further criminalized people living with HIV. Our second national HIV is Not a Crime conference, this year co-produced with the Positive Women's Network, was held mid-May at the University of Alabama/Huntsville and we had nearly 300 attendees, almost twice as many as at the first conference held in 2014 at Grinnell College. So, yeah, we've made many strides and there are many more to come. Stay tuned.

WCT: You have been critical of PrEP in the past. More people are using it now; have your thoughts about PrEP changed at all? [Pre-exposure prophylaxis ( or PrEP ) is when people at very high risk for HIV take a medication daily to lower their chances of getting infected.]

Strub: My criticism hasn't been about PrEP per se. I've long advocated its availability to those who will not or cannot use condoms. My criticism has been on promoting it widely as a public health intervention, especially when that is done at the expense of other prevention strategies. My prediction about PrEP remains the same, which is that it is likely to follow a trajectory similar to what has happened with unwanted pregnancies in the last 15 years. They have dropped dramatically among white and affluent women and risen significantly among women of color and those living in poverty. PrEP will reduce HIV transmission among some groups, mostly those of relative privilege, and we'll see continued increase in transmission rates amongst the most disadvantaged. You can't focus mostly or just on bio-medicalization of HIV prevention or unwanted pregnancies. The reasons behind them are more complex and need more complex interventions than a pill. But we live in a society that likes easy answers, especially if they come in a pill or are a product someone is marketing.

WCT: What do we have to do in order to preserve the stories and accounts of HIV/AIDS when collective memory has become, for many reasons ( internet, etc. ) ephemeral?

Strub: I urge people to write their stories, record them, videotape them, because as time passes there are fewer and fewer of us who were around on the frontlines, from the beginning. It is important that we leave a record of what we witnessed and experienced. As people age and die, more private collections of contemporaneous documents will emerge and I think, in time, the story of the epidemic through the '80s and '90s may be seen quite differently than how it has been fixed in popular culture today. There were heroes, to be sure, but there were also villains, including within our own community and, in time, they may be held to account. But for the truth to be told, we all have to tell our own stories and get them documented so they are available for the research and analysis years from now.

What I think is the most important missing piece are the stories of "average" people; those men and women who were never quoted, aren't famous, didn't build careers within the epidemic, but whose lives were turned upside down and changed in profound ways by the epidemic. I'm not disparaging those who are well-known or found careers in the epidemic—I'm one of them—but there won't be any problem getting our stories told. I traveled to more than 80 events in 27 states promoting my book, Body Counts. In almost every city, from Kalamazoo to Shreveport, from Cedar Rapids to Spokane, I met people—men and women, HIV-positive and HIV-negative—who had amazing stories from those early days in their communities. Their stories are what we are at risk of losing and that would be a terrible shame. I encourage HIV service providers, local historical museums and others to commission oral histories—maybe hire young people with HIV to conduct the interviews—to get those stories documented.

For HIV/AIDS statistics, see .

facebook twitter pin it google +1 reddit email

Windy City Media Group does not approve or necessarily agree with the views posted below.
Please do not post letters to the editor here. Please also be civil in your dialogue.
If you need to be mean, just know that the longer you stay on this page, the more you help us.


Gay News

NATIONAL Autistic trans guide, trans death, AIDS Quilt, intersex study 2020-10-19
- The National LGBTQ Task Force and the AWNNetwork released a collaborative guide, "Before You Go: Know Your Rights & What to Expect at the Doctor and in the Hospital"—a groundbreaking first-of-its-kind publication filled with tips and ...

Gay News

TPAN names Colleen O'Neill as its new CEO 2020-10-15
- TPAN has announced the hiring of Colleen O'Neill as its new CEO to assist in empowering the organization to continue to provide care and far-reaching education to people affected by HIV/AIDS, hepatitis and all related issues, ...

Gay News

Nat'l AIDS Memorial to launch 50-state AIDS Memorial Quilt Virtual Exhibition 2020-10-09
--From a press release - SAN FRANCISCO (October 9, 2020) — The National AIDS Memorial is announcing a virtual exhibition of the AIDS Memorial Quilt (the Quilt) that will feature more than 10,000 Quilt panels representing all 50 state and U.S. ...

Gay News

PASSAGES Timothy Ray Brown, who was cured of HIV, dies of cancer at 54 2020-10-01
- After a five-month battle with leukemia, Timothy Ray Brown—publicized as the first known person to be cured of HIV, and also known by many as "The Berlin Patient"—has died of cancer, according to the International AIDS ...

Gay News

NBJC releases statement on National Gay Men's HIV/AIDS Awareness Day 2020-09-27
- In honor of National Gay Men's HIV/AIDS Awareness Day (Sept. 27), the National Black Justice Coalition (NBJC) released a statement: "Today is a day to celebrate that HIV is no longer the death sentence it once ...

Gay News

AIDS Run & Walk Chicago returns with reformatted 2020 event 2020-09-24
- AIDS Foundation of Chicago's annual AIDS Run & Walk Chicago has been reformatted and expanded so community members can participate in the fundraiser while still social-distancing and adhering to public-safety guidelines. While an event at Soldier ...

Gay News

Chicago House moves central hub 2020-09-03
- Chicago House—founded in September 1985 as an organization committed to providing a home to individuals dying of HIV—has relocated its central hub to the South Loop, at 2229 S. Michigan Ave., Ste. 304. The central hub ...

Gay News

WORLD Tom of Finland, India items, Denmark legislation, PrEP study 2020-09-02
- The works of the iconic Finnish artist Tom of Finland will be exhibited in Japan for the first time ever, a press release noted. The exhibition is the result of a collaboration between the Finnish Institute ...

Gay News

Open House Chicago taking place Oct. 16-25 2020-08-18
- The Chicago Architecture Center (CAC) announced the return of Open House Chicago (OHC) for a 10th consecutive year. It will take place Oct. 16-25, and the festival has been reconfigured for both in-person and remote attendance. ...

Gay News

NATIONAL Streisand/Summer, HIV treatment, Alex Morse, Barney Frank 2020-08-18
- MeidasTouch, a progressive Democratic political action group, teamed with the LGBTQ voting initiative Vote Proud for their latest video, titled "Enough Is Enough," Billboard noted. The video focuses on rallying queer people to vote by pointing ...

Gay News

INT'L AIDS CONFERENCE: HIV research informing COVID-19 vaccine development 2020-07-13
- Journalist Lisa Ling hosted the second season premiere of "The Road to a Vaccine," which was a part of AIDS 2020: The 23rd International AIDS Conference. Panelists discussed how efforts for an HIV vaccine have assisted ...

Gay News

TPAN letter: We stand with you 2020-06-08
- June 8 marks two weeks since the violent death of George Floyd at the hands of four former Minneapolis police officers, who have since been charged with murder. On a personal level, I am heartbroken and ...

Gay News

WORLD Zambia pardon, fashion house, HIV+ mayor, Costa Rica marriage 2020-06-01
- Zambia's president pardoned a gay couple sentenced to 15 years in prison in November under colonial-era sodomy laws in a case that caused a diplomatic conflict with the United States, Reuters reported. Japhet Chataba, 39, and ...

Gay News

THEATER Larry Kramer (1935-2020), polemicist and playwright 2020-05-30
- Larry Kramer was an angry man and he made sure people knew it. The language of his public discourse—the hundreds of articles he wrote and speeches he made, his novels and plays—drips with venom, insult, sarcasm, ...

Gay News

Chicago House to present Impact of COVID-19 on trans communities May 29 2020-05-28
- CHICAGO, IL — Transgender people, who traditionally experience barriers accessing safe and affirming health care and having their concerns listened to and understood, are facing new challenges due to the COVID-19 pandemic. To address the specific ...


Copyright © 2021 Windy City Media Group. All rights reserved.
Reprint by permission only. PDFs for back issues are downloadable from
our online archives. Single copies of back issues in print form are
available for $4 per issue, older than one month for $6 if available,
by check to the mailing address listed below.

Return postage must accompany all manuscripts, drawings, and
photographs submitted if they are to be returned, and no
responsibility may be assumed for unsolicited materials.
All rights to letters, art and photos sent to Nightspots
(Chicago GLBT Nightlife News) and Windy City Times (a Chicago
Gay and Lesbian News and Feature Publication) will be treated
as unconditionally assigned for publication purposes and as such,
subject to editing and comment. The opinions expressed by the
columnists, cartoonists, letter writers, and commentators are
their own and do not necessarily reflect the position of Nightspots
(Chicago GLBT Nightlife News) and Windy City Times (a Chicago Gay,
Lesbian, Bisexual and Transegender News and Feature Publication).

The appearance of a name, image or photo of a person or group in
Nightspots (Chicago GLBT Nightlife News) and Windy City Times
(a Chicago Gay, Lesbian, Bisexual and Transgender News and Feature
Publication) does not indicate the sexual orientation of such
individuals or groups. While we encourage readers to support the
advertisers who make this newspaper possible, Nightspots (Chicago
GLBT Nightlife News) and Windy City Times (a Chicago Gay, Lesbian
News and Feature Publication) cannot accept responsibility for
any advertising claims or promotions.






About WCMG      Contact Us      Online Front  Page      Windy City  Times      Nightspots      OUT! Guide     
Identity      BLACKlines      En La Vida      Archives      Subscriptions      Distribution      Windy City Queercast     
Queercast Archives      Advertising  Rates      Deadlines      Advanced Search     
Press  Releases      Event Photos      Join WCMG  Email List      Email Blast     
Upcoming Events      Todays Events      Ongoing Events      Submit an Event      Bar Guide      Community Groups      In Memoriam      Outguide Categories      Outguide Advertisers      Search Outguide      Travel      Dining Out      Blogs     
Classifieds      Real Estate      Place a  Classified     

Windy City Media Group publishes Windy City Times,
The Bi-Weekly Voice of the Gay, Lesbian, Bisexual and Trans Community.
5315 N. Clark St. #192, Chicago, IL 60640-2113 • PH (773) 871-7610 • FAX (773) 871-7609.